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If I or Someone I love Has A Mental
Illness, What Kinds of Help Might I Look for in my Community? |
Financial Support
Paying for treatment and meeting basic living expenses can present a
major financial challenge for people with serious mental illnesses and their
families. Some public money is available to help individuals and
families meet these costs, but obtaining government benefits generally takes
time and persistence. People coping with disorders like schizophrenia
and bipolar disorder usually need help with the complicated process of
applying for the money they're entitled to receive.
People who cannot work because of a serious mental illness may be
entitled to disability payments from the Supplementary Security Income (SSI),
Social Security Disability Insurance (SSDI), or General Public Assistance
(GPA) programs. Money for medical treatment may be available through
Medicaid or Medicare.
Be sure to ask for this kind of help if you think you are eligible.
By themselves, few families can afford to support a family member with a
serious mental illness over his or her lifetime. If you are eligible
for support, you are entitled to receive it, and such income can help bring
stability to you and your family.
To learn about the financial support available in your state and
community and how to apply for it, contact your local Social Security
Administration (SSA) field office. The Social Security Administration
should be listed in your telephone directory's U.S. Government section.
Your telephone book may also list local offices for Medicaid and Medicare.
Terms to know
SSI
Supplemental Security Income is a federal program to provide income to
those who are aged, blind, or disabled. (Some states contribute a
small amount of money.) Eligibility is based on financial need and
disability determination.
SSDI
Social Security Disability Insurance is for disabled workers who have
paid into the Social Security system through payroll deductions.
Some disable persons under age 22 may collect SSDI under their parent's
account if the parent is retired, disabled or deceased.
GPA
General Public Assistance is available in some locations to those who
are disabled and either ineligible or waiting for other assistance.
Medicare
A federal health insurance program for those over age 65 and disabled
workers.
Medicaid
State and federal health insurance for those with low incomes.
Eligibility varies from state to state.
Representative Payee
A family member, friend, or community advocate who receives the
monthly SSI or SSDI check for the person with a mental illness and helps
him or her manage the money.
Questions to ask
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What are the eligibility requirements for SSI, SSDI, Medicaid,
Medicare, or GPA disability income and how do I apply for these benefits? |
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In my community, do the services and programs for people with mental
illnesses have financial and other eligibility requirements, and if so,
what are they? |
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If my request for benefits is denied, how do I appeal this ruling?
Who can help me appeal? |
Treatment and Crisis Intervention
Many people with serious mental illnesses need continuous, long-term
support at some level to manage their medications and symptoms. When a
crisis requiring hospitalization occurs, they need people who know them to
coordinate their care with hospital staff and ensure continuity of services
when they return to the community. While outpatient psychiatric and
medical treatment services vary widely across the country, the most
effective programs work closely with their clients to help them work toward
recovery. Good programs use the most effective new medications,
prevent unnecessary hospitalization, and provide 24-hour-a-day,
seven-day-a-week emergency aid when it is needed.
Terms to know
Crisis intervention services
Provide emergency help to people in psychiatric crisis.
Depending on the severity of the crisis, services may include telephone
support, home visits, crisis residence, transportation to and from the
hospital, and coordination with hospital staff on admission, discharge,
and treatment.
Community Mental Health Centers (CMHCs)
Local facilities offering outpatient treatment and emergency services
for people with mental illnesses. They are often funded by the state
and federal government and may also provide services and information for
families.
Case management
The coordination of treatment, services, and supports.
Questions to ask
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What service programs will work closely with the doctors and hospitals
in my community to monitor medications and help if there is a crisis? |
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Who provides transportation for those who need crisis intervention? |
Housing
Like anyone else, people with mental illnesses want to live in places
that are clean and safe, where they can be full members of the community and
live as independently as possible. Depending on each person's medical
condition and the kinds of support services available, the degree of
independence in housing arrangements varies. Housing options range
from fully supervised group homes, and board-and-care homes with meals and
care provided on site, to more independent arrangements. These include
supervised apartments in which clients live independently, either in the
same complex or in supported housing scattered throughout the community.
Supported housing allows people with mental illness to choose where they
want to live and offers flexible services and supports wherever they are.
Service programs like Fountain House-model clubhouses and programs of
assertive community treatment help consumers find housing in the community,
and help them apply for government housing subsidies.
Terms to know
Group Homes
Provide 24-hour supervision, medications monitoring, and staff help to
carry out the activities of daily life.
Board-and-care homes
Offer daily meals, dispensation of medications, and minimal staff
supervision.
Supervised apartments
Generally several apartments within the same complex, supervised by a
staff member who sometimes lives in the complex. The focus is on
developing social skills and independence, and supervision varies from
daily to weekly contact.
Supported housing and satellite apartments
Allow individuals with mental illnesses to live wherever they choose
within the community and receive whatever level of support they need to
remain independent.
Section 8 housing
Federally subsidized housing for people with low incomes. The
public housing authority in your community manages Section 8 subsidies.
Those who qualify pay approximately 30 percent of their monthly adjusted
income for housing. A Section 8 subsidy can be for a specific
apartment development of for an apartment with another landlord who will
accept Section 8 vouchers.
Questions to ask
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What kinds of housing are available in my community for people with
mental illnesses? |
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What does such housing cost, how does one apply for it, and who
supports those who live in it? |
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Is there a waiting list for housing and if so, how do I get on it? |
|
Mark describes his
recovery this way:
"I never expected to get better, but in my community I have found the
miracle of hope." |
Employment
For people with persistent mental illnesses, having a paid job is a
vital step toward independence. Vocational services help individuals
recover their ability to finding and keeping a job. Programs offering a
range of social, vocational, housing, and other services often provide work
on site for members as well as transitional-employment programs to support
them as they re-enter the mainstream work force. Typically,
rehabilitation staff provide placement, training, supervision, and backup
for members in mainstream jobs.
Terms to know
Transitional Employment
Places people with mental illnesses in temporary, paying jobs in the
work place. Often, two people share an entry-level position.
An agency staff member helps with training and emotional support and fills
in during absences. The emphasis is on building skills and positive
work experience for as long as it takes to achieve maximum independence.
Supported employment
Places people in competitive jobs in the community. A job coach
helps them learn job skills and adjust to the work environment.
Questions to ask
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How do the service programs in my community train and support people
with mental illnesses to re-enter the workplace? |
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How many jobs do they make available to their clients and members? |
Personal and Social Needs
A serious mental illness often interferes with a person's ability to
care for him- or her-self and maintain comfortable and satisfying
relationships with others. Comprehensive community services such as
the Program of Assertive Community Treatment, or PACT, include help with
personal care, housekeeping, and personal hygiene when it is needed.
Many community programs offers social and recreational activities to reduce
the isolation, loneliness, and stigma that so often accompany mental
illnesses. Consumer-run drop-in centers provide a warm atmosphere of
welcome and acceptance. Consumers can gather whenever they wish and
may develop positive, long-term relationships.
Terms to know
Clubhouse programs
Programs like Fountain House offer mutual support in a caring
community setting. Members have a strong sense of ownership and know
that they are needed to make the clubhouse function.
Psychosocial rehabilitation programs
Often available through Community Mental Health Centers and hospitals,
while some operate independently. These programs provide a variety
of services that may include vocational training, social and recreational
programs, and personal support for independent living.
Drop-In centers
Places where people with mental illness can go for support and
socialization. They are staffed by consumers, and some also offer
job training.
PACTs (Program of Assertive Community Treatment)
Outreach-oriented, service-delivery programs for people with sever and
persistent mental illnesses. With a 24-hour-a-day, seven-day-a-week,
team approach, PACT offers treatment, rehabilitation, and support services
to consumers in their homes, at work, and in community settings.
Questions to ask
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Is help with personal support, shopping, and housekeeping available if
it is needed? |
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What organized social and recreational activities are available for
people with mental illnesses? |
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To what extent are people with mental illnesses involved in organizing
and providing these services and programs? |
Managing Money
To achieve independence, those with mental illnesses need skills to
manage their own money and make their own decisions about spending and
saving. In some programs, people with mental disorders can learn to
prepare a budget, pay rent and other bills, manage a checking account.
Some also offer banking and small-loan programs.
Questions to ask
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Do the service programs in my community provide help with banking and
managing money? |
Education
Returning to school to acquire basic skills or technical training or to
work toward a high school or college degree can help people with mental
disabilities regain confidence, follow personal interests, and acquire
skills and credentials for pursuing a career. In come communities,
supported education programs help people with mental illnesses enroll in
school, apply for scholarships, schedule classes, and buy books and
supplies. Staff also support them as they learn to adjust to school
atmosphere.
Boston University has created a continuing education program especially
for young adults with a history of psychiatric disability. When
students in the program complete four semesters of course work, they can
take other courses at the university or move into jobs. An active
alumni program continues to support students after they graduate.
Similar programs are increasingly available at local community colleges.
Questions to ask
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What education programs are available in my community to help people
with mental illnesses pursue their degrees? |
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